Just another Tuesday

March 28th update Good Evening, yep it's that time again. Today was a decent day, nah it was a great day. I had to change the dressing again today, the rash is just about gone and that may let me get the wound vac tomorrow. Which might be a good thing, I ran out of the packing strips today. The pain has been letting me know today that I still have a wound that is not healed. I am considering heading to Johns Hopkins and see if I can just admit myself for daily testing for the rest of my life. Too many rare disease and too much happens daily when I am on the medical journey. I mean I really would be ok with that, maybe take a 2 week vacation to come see everyone. When I went to change the dressing there was a different color draining so of course a text was sent to my super hero, my home health nurse. We shall see what she says and she will be by tomorrow to check out whats going on.-------------------------------------------------------------------There are times where in the evening I think I need to get ready for bed so I can get up and go into work, it takes me about 5 minutes before I realize I am still out of work. I know it's crazy because I have been out for a bit now and when I sit in my recliner I will some times forget that I have a wound. Today the pain has reminded me most of the day. Also I am ready to get back to work but my body says nope not right now. So I get comfy and decide what I am gonna watch on tv and relax. There are times during the day that I have to remind myself what day it is. I will say I have learned to take each day as it comes and not worry about tomorrow. I am getting better at that. So tomorrow as you go about your day just focus on today and what you can get done and then do one thing you want to do!!.